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Great Ormand Street

Saturday, 22 December 2012

We left for Great ormand street at half 8 Wednesday morning and we got there about 2 ish, we went straight to our hospital accommodation but we couldn't get in until 3, so we went to meet Marie(shes had a transplant) and she brought some cakes she made which were LUSH! & some Christmas presents for me and mum! & we gave her Christmas presents too :) when we met her when could get in out accommodation so her & her mum came in and we was talking for like 3 hours then we went to GOS to the cafe and had a cuppa tea, well i didn't the adults did ;) we left them about 7 & me, mum and dad went SHOPPING in oxford street! :) we didn't go to many shops as i was tired, but went to the good ones like primark and new look;) then had subway and went back to accommodation and then dad left to go to his hotel, so mum helped me try all my new clothes i brought on, some of it fitted but some of it was too big! :( we went sleep not long after that as i was so tired!

we woke up & we had to be out the accommodation by 10 so we was up early :( our appointment at GOS wasn't until 11 so we went for breakfast in the cafe but i didn't eat anything i wasn't hungry, so i had bloods at 11;30 then went for x ray and had to be back in the isolation room by 12;30 to be clerked by the doctor(don't actually know what clerked means) & after that they said we could go for lunch so we went to Giraffe, & did a bit more shopping! i brought 2 pairs of converses :) we went back to the hospital for 4:00pm because i had to do lung function but Paul Aurora(transplant consultant) wanted to see me before as he was busy for the rest of the day. He basically said 'all were waiting for is a new pair of lungs for you' & to check i wanted to stay on the transplant list, witch i obviously did, but i had a little cry as i always do! haha. i am 147cm tall so i need bigger lungs now, he said that was good though, i was 144cm when i went up 7 months ago & i was 27.7kg in weight 7 months ago and now 29.1kg, he then said he doesn't think i should do lung function because i previously had a pneumothorax and doing lung function could make it come back, but yeah he was happy with me and told me to not give up fighting and to do as much exercise as i can because the fitter i am the fitter i am after transplant.
basically i JUST NEED NEW LUNGS!

we left the hospital at 5:00 and it took us 3 hours to get out of london! the traffic is so bad in london! but we finally got home at half 11 on Thursday and i went straight to bed! i havnt done much in past couple of days just chilled & excited for CHRISTMAS IN 3 DAYS!!! yaaaaay!

Merry Christmas everyone! thank you for reading my blog! 

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