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my life so far..

Tuesday, 21 February 2012

when i was born 20.08.1998 there was nothing wrong with me, my parents had no clue i had cystic fibrosis, everything was fine untill i was 18 months when i was rushed to hospital becuase i had a prolapse, i had some test done & thats when my parents found out i had cystic fibrosis it was ovbiously a massive shock to them & they didnt know anything about it but they dealt with it & carried on.
when i was 4 i went to school & i did everything the same as others, i could do everything! never got out of breath, i was never ill, i was fine & that carried on untill december 2010 then everything went down hill, i was in hospital for 3 weeks having IV antibiotics & i was on oxygen & lung function went from 49% slowly to 25% and ive never got it any higher than that. in 2011 i was in hospital everytime i had my IV's really and my lung function was about 22% on october 31st i went for my annual review & thats when i found out i had to be put forward for a heart & lung transplant, it was the most horrible moment of my life me & my mum couldnt stop crying, & my dad was there just trying to calm us down, a few weeks later we came around about the idea of a lung transplant. 2nd december i had a feeding tube put into my stomach, i didnt want it but i knew i had to have to make me better & put on weight, and it took me about 2 weeks to get used to it, then it was christmas!:D which was nice to have all my family come round and spend the day with them. 14th febuary 2012 we had a phone call saying we had an appointment at GOSH hospital for my assessment for a lung transplant & weather im going to go on the list or not, we havnt had a date yet but were wating, they said on the phone maybe march or aprill.


thank you for reading i will write something else soon!:)

11 comments:

  1. Hi Katie
    My Niece Courtney is 14 and has Cystic Fibrosis. I loved reading your blog and I hope you get what you need xxx

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    1. thank you! hope your niece is ok! xxx

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  2. you are so so brave Katie,hope all goes well with yr assessment, all the best to you n yr family x x x

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  3. Katie your just the best im so proud of you and your going to get through it i know what a brave girl you are iloveeyou so much bestfriend hear for you 24 7 xxxxxx

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    1. thankyou Amber! love you lots best friend xoxoxo

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  4. katie just seen this, i hope everything is okaay :P just keep your head up, love you soo much im always here for a chat if you need it !! <33
    xxxxxxxxxxxxxx :) from keziah <3<3

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    1. thanks kez, love you!!<3<3<3

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    2. that's okaai, anytime <3<3 hope to see you soon, love you xxxxxxxx

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  6. katie babe, you no where i am if you ever need me, you live 3/4 doors down from me! but i never see you:'( i hope everything goes well your such a brave little girl! you alway keep a smile on your face, no matter what! and no one can ever say your not beautiful because you are! wether you in a wheelchair, have tubes, your beautiful, and no one should ever tell you differnet, your one of my great friends, and i wouldent change you, if i could make you better! i really would! just remeber, your not different! your the same, but your special! special to everyone! althought your going through so much, you never fail to help someone with the problems there facing! and give them advice! you keep well katie! i love you, Georgia'jackman.xoxoxoxoxoxoxoxoxox

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