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the other 2 days in london!

Sunday, 29 April 2012

Tuesday was so hard & tireing, i didnt get much sleep the night before, so i was really tired the next day! i had to be in the hospital for 9:00am for a blood test! & i had to have a canula in but they couldnt fit it in a vain so they tried 4 times! i realy hate needles:( i had to have lots of tests that day!:(

this is what i had to do..
- fasting bloods + blue canula
- psychlogist
- dexa scan
- abd. US + chest xray
- chest CT

i was so tired! i couldnt eat before my bloods so i was hungry aswell:( that was was the worst day i had in a while! i was glad to get it done with, after all that i needed to go back and get some rest! & have tea. but i met up with a girl who had a lung transplant that ive been speaking to for a while! shes very helpfull & she answers anything i ask!

today i had to see the consulant, was was there for about an hour, he asked me some questions & then the main one. he asked me if i was sure i wanted to go onto the lung transplant list & i said yes im sure, i want my new lungs! i want to be like any other girl! i want to walk & not get out of breath! then he said ok. & then said... ive got onto the lung transplant list :) :) :)

me and my family are so happy & we needed to take it all in before i writ this :) x

the first day at great ormand street hospital.

Monday, 23 April 2012

today has been so tireing it was the first day at GOSH & we had to be there by 10 and finished at 5 our plan for today was..

- Transplant talk
- echo & ECG
- lung function
- clerking(talking to doctor about medical history)

it was a long day & alot to take in, had a little cry but it was because i had to take everything in because there is so much!
after we finished at GOSH we went for tea at mc donalds:P & then came back to our room/flat but then there was just something that happened...

THE FIRE ALARM WENT OF!! me and mum are sleeping on the 7th floor! and we couldnt get the lift down or go down in my wheelchair & mum couldnt carry me so i just ran right down 3 flights of stairs but then i couldnt go no further i was too out of breath. so a lovely man came and carried me down the rest.
we got to the bottom & they said we could come back up it was just a mistake!

im tired now so just chilling in the flat! xxxxx

the past 2 months or so...

Monday, 16 April 2012

hello:) sorry i havnt written in a while!

well i havnt been very good since febuary, ive been on 2 courses of IV antibiotics & i have been in hospital because my lung function went down to 15%, when i was in there i got put on oxygen because my sats were staying at 88 and the doctor said i should atleast be at 92 so i was on 1 litre of oxygen & my sats went right up to 97 but i had to have it turned down to 0.7 so that was bit good news, i stayed there for 1 week & then i did a lung function & it had gone up to 18% and then they let me come home! i carried on my iv antibiotics at home but the bad news was that i still had to be on oxygen, so i had home oxygen, i felt more comfortable at home! then my 2 weeks was up of ivs, i didnt feel much better, im still on oxygen 24 hours a day also im in a wheelchair when i go out, i dont have as much energy as i used to. last monday i had a sleepover with 4 of my friends & it was well good but the next day i was so ill, i didnt eat, i couldn't move because i had no energy atall, but then mum did all my physio & then i did feel a little better & i did eat something! :) last thursday i had CF clinic that didnt go to well, my lung function was 14% but the doctor said that i proberly wont get it any higher now & also i lost abit of weight:( the past couple of days i havnt done much, im usually to tired to do anything, but im getting a little puppy next week!!!:D so i have to go shopping tomorrow with mum to get a few bits for him:) i dont know what im calling him yet though! hes sooo cute! this is him...

ill write next week when im in london for great ormand street hospital! :) xxxx
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