Helloooo sorry i haven't wrote for a while.
sooo... i finished my last course of IV's on the 4th and i still didn't feel myself but my doctor said to still come of I'V's and go on a course of co-trimoxacole and he thinks im becoming resistant to meropenem and amikacin which isnt good :( and i still felt unwell on friday so i had to go up to the hospital to get checked over as I've been getting LOADS of chest pains :( but my bloods were fine! my CRP was only 28 i think so they let me home. I'm came back in hospital yesterday as i have to have another course of IV's but this time im on colistin IV & tobramycin nebuliser. Last night i took some beater blockers to make my heart rate slow down as my heart rate is quite high and they've worked abit so thats good :) my CRP is 46 so i have an infection but its not as bad as last time thankfully! and today they took blood for a gas, this tells us what my carbon dioxide levels are, they are usually around 6 but mine is 8.9 so i have to use my bipap more often and soon i will have to use it at night time, but its so hard to get use to! the mask has to be really tight and now they've added a humidification bit so it can add moisture into my lungs to make it easier to bring up mucus and that is warm so its really hot under the mask! but i will get use to it!! :)
oh yeah.. I put in a wish at 'Raise of sunshine' and i wished to either
- meet one direction
- have a apple mc laptop
- go to london with mum and sisters
and the day before i came into hospital they rang and said.. I COULD MEET ONE DIRECTION ON SUNDAY IN LIVERPOOL!!! but.. Because im not well enough i cant go!! :( :( and plus loverpool is quite far away so i would get so tired in the car but i was soo gutted when my mum and nurse said i couldnt go :( BUT I'm getting a signed one direction picture sent to me!!! so i chose for me, my mum and 2 sisters to go to London for a weekend and were going to go on the London eye, go to madame tussauds and GO SHOPPING! they're giving me spending money to and were staying in a hotel and they pay for food to! they need 2 weeks notice so were gonna wait until I'm better :)
ill update again soon, thank you for the messages and support
9 months 15 days on transplant list..x
You're attitude to life belies your age - you're a super star! Sorry you couldn't meet one direction but as a Londoner London is amazing! Definitely go on the London eye although I don't rate Madame Tussaud's much - I'd much rather go to London Zoo! You never know they might let you feed one of the animals if they were asked in advance! Really hoping your call comes soon! xx x
ReplyDeleteI really hope all your wishes come true hunni. Thinking of you and wishing you well. xxxx
ReplyDeleteFrom a fellow Cyster across the pond, you are an amazing young woman. I sincerely hope that you get what you wish for,but most of all I pray that you get those bright new pink lungs soon. As I've never been to Britian I hope you have loads of fun in London with your sis and mum. Keep on fighting, :) you're so strong!
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