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the longest time I've been home! :D

Wednesday, 3 July 2013

im home! ive been home for a month now! :D we had to go up to see the doctor on the 6th junefor a check up as i have to go up twice a week just to get seen to make sure im okay, i got weighed and i was 29.7kgs! :( i had lost weight in 4 days from 30.15 to 29.7kg because i hadn't eaten properly! my appetite was completely gone! i was being sick too. so Dr Dalton(my doctor) said i had to have over night feeds again, and i had to have to put weight by the following Monday or else i would of been admitted, we did the overnight feeds for 4 nights but i was waking up being sick in the night and my stomach felt like it was going to explode and i was having really bad pains:( so we decided to have 3 fortisips before i go to sleep, and that was still playing with my stomach! so im back to square one having no feeds! Just drinking the fortisips during the day! I've been pretty well recently that's why I haven't been in hospital and to be honest I've had enough of being in hospital all the time! I know it makes me better but I'm just fed up of looking at 4 walls all time :( I will go in when I know I'm quite ill and need to go in though! I finished ivs on 24th June I was on them for a month, but on the 24th me and my mum was interviewed to be on the spotlight news for CF week!! The interview was hard and I did cry! It was on that Monday night but I didn't get to watch it as I was on holiday!! :) I went to butlins for the week! So that Monday was a busy day as I had the interview then went straight on holiday! I had a great week, we went on family bikes, went in the skyline most of the time to wins tickets and stuff and I got 6000 tickets!! I got a massive slipper to put both my feet into whilst I sit on the sofa and chill and also I got a lava lamp :) they were 3000 tickets each, we also went to town shopping, my step dad did a bungee jump haha! I had chest pain whilst I was away and I was very tired, we was going to come home a day early as I didn't want to stay and I was going to see my doctor, but in the end we stayed because I felt abit better later in in the day :) when we came home Friday I could finally watch the news and it was a good piece! everyone was writing to me saying they was crying and how strong I am! I just want to thank everyone who did message me! I look so different on telly and sound really different! Monday my nurse came to my house to make sure I was ok after the holiday and said I needed to start iv antibiotics Tuesday and I have! I was meant to go into hospital to start them but I'm well enough to stay home for them! :)

Don't think I have anything else to write! Just thank you for all the messages I get! it meant a lot!

1 year, 1 month and 3 days on transplant list..x


  1. Katie your such a strong brave young girl. I work in a care home, we all watched you on spot light and each and everyone of us had a tear or two. Your an inspiration you really are. I hope you get your lungs soon girly for sure you really deserve them. Take care xxx

  2. Hi, Katie. I have been following your story. I live in NC, USA and have a 12 year old daughter with CF. I pray for you and new lungs for you soon. You are a strong young lady!


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